When Pain and Loss is Too Much

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Behind the cheeky smile lies much hurt, sadness and vulnerability. Although I’m all grown up now, it doesn’t mean my pain has ever gone away!

I’m not usually one to vent my frustration and hurt on social media but here I go!! I am sick of living a life of pain and loss. Over the past few years, I’ve spent so much of my time in mental health facilities, I can’t even count them all. Every time I think I’m getting better, something shit brings me back down. You would think being in a mental health facility would enable you the care and support you need. I can tell you – it’s far from it!

I’m currently in a mental health ward and life feels like it has just fallen into a million pieces over 24 hours! I have disappointed my adoptive parents, affected reputations, lost friends and now feel like I’ve got to fight this battle on my own.

I’ve had several occasions where nurses come talk to me and they lecture me on my life! As an adoptee how dare they sit there and tell me everything’s going to be okay, that I am privileged and should be grateful for what I have!

I’m sure many other adoptees have had these statements said over and over again. How dare people who don’t know me lecture me about my life. They don’t know what it’s like to lose my birth family and have a million questions unanswered. So what gives them the right to be so judgemental?

I want to leave the question open to other adoptees – how do you get through each day and battle mental health issues?

The mental health system is truly messed up and people need better training in how to help adoptees manage our loss and grief. There is so little real and useful help! We have lost so many beautiful adoptees souls. Every time I see another adoptee has passed away on the Intercountry Adoptee Memorial page, my heart sinks and digs me deeper into my depression. It reminds me of how bloody hard we have to work compared to others in society – to fit in and get through this continuing nightmare.

I can tell you honestly I am struggling so much that it has scared me for life. I don’t know how much longer I can face anyone or anything on this planet!

by Pooja
Indian intercountry adoptee in Australia

Mental Health and Adoption

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Mental illness, mental health – words which most people don’t like to read in connection with the word adoption. We usually like to think of happy forever after families but the reality is, adoption is based on the trauma of relinquishment and loss so it’s no surprise that adoptees suffer rates of mental illness far higher than the non-adopted population.

So instead of burying our heads in the sand and ignoring the reality, lets talk openly about what we might do better to assist individuals and families with a lived experience of mental illness.

In Australia, October is Mental Health Month and I’d like to explore how we might reduce the feelings of isolation and the daily struggle for adoptees with a lived experience of mental illness. How do we be more sensitive and not inadvertently trigger underlying pain? Not only do adoptees with a lived experience suffer the same loss from relinquishment as all adoptees, but they suffer a double whammy from the stigma of mental illness that further compounds their early life traumas.

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Over the years of connecting and peer supporting my fellow adoptees, the toughest experience is feeling like I let down my fellow peers with a lived experience of mental illness. I do not come equipped knowing intuitively how to support them and what makes it hard in my role as a peer, is the boundaries of peer support via social media and face to face are loose and undefined. What I’ve learnt is, adoptees with lived experiences of mental illness need stronger boundaries because it’s helps them feel safe when reaching out.

I know there’s nothing more powerful than hearing it from those who live it. So, I’ve asked one of my peers who has some ideas from a lived experience perspective. She has kindly shared her thoughts on how we can provide better support to adoptees and she is currently working as a volunteer peer educator in mental health. I personally thank her for providing this wealth of information which she has gathered over the course of her life journey! She does so in the hopes it helps her fellow adoptees with a lived experience of mental illness.

Here is what she provides, including the list of resources at the bottom.

Throughout this article, the term lived experience refers to someone who identifies as having a mental illness, or comes from a complex trauma background, or could be a carer for someone with lived experience. Most importantly we need to recognise that someone suffering from those symptoms has lived experience which is not a label nor does this define them as a person. Just as people aren’t their “broken arm” or their “headache”, physical and emotional / medical illness needs to be treated with the same respect.

Here are some of my ideas of what could be done to better support adoptees with lived experience in mental illness:

Purposeful Storytelling

Encourage others to hold adoptee-with-lived-experience events like a meal or a forum / workshop where they can talk about their recovery journey. This breaks stigma and is not a rant but a shared story with a purpose to help others in sharing what helped.

You could frame the purposeful storytelling like a set of questions for the adoptee to share on such as: What has helped vs what didn’t help? How have you changed from then to now? What would you like to see done or said differently? What do you need more or less of, to continue your recovery going forward?

Social or Workshop Events

Hold weekly or fortnightly coffee catchups or have a walk or art group, but the emphasis is not counselling. Ask the adoptees with lived experience in mental health to write a list of resources that helped them and make it accessible to others online.

Invent an Adoptee wtih Lived Experience Day to honour those adoptees and have a fun, self care activity day. Do this also for their Carers. You could include info booths, pamper booths, plant a tree activity, food and art activities, talks by people with Lived Experience and people of social standing to attend and open the event.

Training / Supervision

Adoptee peers should go through Trauma Informed Care (TIC) training and Developmental Trauma Disorder training (same as Complex Post Traumatic Stress Disorder training). TIC training is all about asking what has happened to a person and considers the context. This is in contrast to asking an invalidating question such as, “What is wrong with you?” or ” Why are you not fitting in?”.

Training and supervision is about the peer support person learning to respond not just react. General awareness about how we speak and act around people with lived experience is necessary and learning about Boundaries, Duty of Care, Accidental Counsellor, Suicide, Mental Health First Aid are all good tool kits to add to your belt.

Training is also about being, doing and using appropriate language at all times and noticing our own triggers and judgments arising and tending to those.

The Recovery Model or Strengths Approach

Both these models are currently the best for providing a framework for engaging people with lived experience of mental illness. You can access these through Recovery College or a similar type organisation. The focus of these models is to bring awareness to what the person can already do for themselves and what has helped so far. There is also training available for carers of people with mental illness.

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People with trauma experiences may not always show or say anything if they are triggered. So it is important to check in and ask if they are okay. Do things like setup safe places / chill zones during events, just in case.

Self education, training and being on boards / committees of organisations like SANE Australia or Beyond Blue was a way I helped myself. They provided opportunities to share my story or join their speakers bureau. Access to education and event opportunities is important for those with lived experience.

If a peer adoptee with lived experience wants to go on to become a peer educator, I found Recovery College and One Door Mental Health teach all the modules needed, including Purposeful Story Telling. After one completes the modules you become a certified “peer educator” and can then teach at the colleges. One Door Mental Health reimburses those who tell their Lived Experience Story at workshops. You can also be reimbursed when One Door Mental Health are asked by a service organisation to speak on a specific subject like BPD, depression, anxiety or schizophrenia.

Anybody’s recovery is as good as the social connection, support networks, finances for support, understanding and opportunities to contribute. Being treated as normal as possible but with the context of trauma, considered as far as our behaviour / limits / expectations can go. This includes what others are capable and willing to be open minded about and setting a context to the bigger picture.

Everyone needs to know that they are seen and heard and that people care. We who live with mental illness matter and have a purpose. We are often shut out and marginalised and our behaviour makes us vulnerable and an easy target for being overlooked as a valued contribution and educational resource to the community.

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List of some Mental Health Resources in Australia