Webinar, Perspective Paper and Resources
On 23 November, ICAV ran a webinar with 6 incredible panelists sharing lived experience as intercountry adoptees with disability and rare medical conditions.
I hope you will take the time to have a listen. Adoptees with disability and medical conditions are often invisible amongst the intercountry adoptee community and our goal was to elevate them and help to raise awareness of the extra complexities they experience.
注意：如果在 Chrome 中观看，请单击“了解更多”按钮观看视频
Webinar Video Timecode
For those who are time poor, I have provided a time code so you can see exactly the parts you wish to hear.
00:00:25 Welcome – Lynelle Long
00:03:51 Acknowledgement of Country – Mallika Macleod
00:05:15 Panelists Introduction
00:05:31 Maddy Ullman
00:07:07 Wes Liu
00:09:32 Farnad Darnell
00:11:08 Emma Pham
00:12:07 Daniel N Price
00:13:19 Mallika Macleod
00:15:19 The changing definition of disability – Farnad Darnell
00:17:58 Reframing how adoptees with disability can be viewed – Mallika Macleod
00:20:39 Processing the shame and brokenness often associated with being adopted and living with disability – Wes Liu
00:23:34 Dealing with people’s reactions and expectations – Maddy Ullman
00:28:44 Sense of belonging and how it has been impacted – Emma Pham
00:30:14 Navigating the health care system – Daniel N Price
00:31:58 What helped to come to terms with living with disability – Mallika Macleod
00:35:58 How disability might add some extra complexities in reunion – Maddy Ullman
00:39:44 The dynamics between adoptive parents and what is ideal – Wes Liu
00:42:48 Preventing the risk of suicide – Daniel N Price
00:44:26 Children being sent overseas via intercountry adoption because of their disability – Farnad Darnell
00:47:09 What people need to consider when starting off adopting a child with disability with “good intentions” – Emma Pham
00:50:13 How the experience of feeling isolated changed over time – Wes Liu
00:53:25 The role of genetics in her conditions – Maddy Ullman
00:56:35 What worked when facing employment challenges – Mallika Macleod
00:59:11 Becoming self sufficient and independent – Emma Pham
01:02:42 Suggestions for adoptive parents – Daniel N Price
01:03:48 Suggestions for adoption professionals to better prepare adoptive parents – Farnad Darnell
01:06:20 How adoptive families can best discuss whether disability was the reason for relinquishment – Farnad Darnell
Summary of Key Messages from the Webinar
点击 这里 for a pdf document outlining the key messages from each panelist and the matching webinar video timecode.
ICAV Perspective Paper
For those who want to dive deeper and explore this topic further, we have also compiled our latest ICAV Perspective Paper which you can read 这里. It is a collation of lived experience perspectives offering a rare view into the lives of a dozen intercountry adoptees who live with disability and rare medical conditions. Together, these resources of the webinar and perspective paper fill a huge gap in knowledge about this subset within the intercountry adoptee community. I hope this instigates the beginning of further discussions and forums designed to help raise awareness and create better supports for and within the community.
I want to raise extra attention that within the in-depth sharing of our perspective paper and the webinar, those who contributed made numerous mentions of the heightened risk of suicide, depression, and isolation. We need to do more to better support our fellow adoptees who are most vulnerable living with disability and medical conditions.
If you have any additional resources that can help build upon what we have started, please contact ICAV or add your comment to this post, so I can continue to grow this list below.
#Rareis : Meet Daniel N Price – a rare disease advocate and intercountry adoptee
With Love August (intercountry adoptee August Rocha, a disabled trans man with rare disease)
Diagnostic Odysseys featuring August Roche (disabled trans intercountry adoptee with rare disease)
Once Upon a Gene – Rare disease intercountry adoption with Josh and Monica Poynter （播客）
#Rareis: Nora’s Forever Home – a rare disease domestic adoptee
埃诺拉 : 申请者 医学智能一号 帮助诊断罕见病，免费使用
神经分歧的被收养者 （跨国收养者 Jodi Gibson Moore 的 FB 页面）
我们都有力量 – Marusha Rowe（脑瘫倡导者和跨国收养者）
对残疾被收养人的暴力、虐待、忽视和剥削 : ICAV 提交的澳大利亚残疾人皇家委员会
Invisibility(ies) 第五节 （视频，由国内被收养者 Nicole Rademacher 主持，他采访了被收养者艺术家 Anu Annam、Jessica Oler 和 Caleb Yee，探索他们的艺术与残疾的关系）
残疾入门：回收、想象、创造变化 （会议录音，2022 年 11 月）
不固定 – 分享患有慢性疾病和残疾的人的故事
长期有能力 – 对于患有慢性疾病和残疾的求职者
护理过渡 - 儿童神经病学 （帮助您从儿科过渡到成人护理）
分水岭DNA （支持和指导帮助那些人了解他们的 DNA 结果）
Easterseals 残疾电影挑战赛 （改变世界看待和定义残疾的方式）