Webinar, Perspective Paper and Resources

On 23 November, ICAV ran a webinar with 6 incredible panelists sharing lived experience as intercountry adoptees with disability and rare medical conditions.

I hope you will take the time to have a listen. Adoptees with disability and medical conditions are often invisible amongst the intercountry adoptee community and our goal was to elevate them and help to raise awareness of the extra complexities they experience.

注意：如果在 Chrome 中观看，请单击“了解更多”按钮观看视频

Webinar Video Timecode

For those who are time poor, I have provided a time code so you can see exactly the parts you wish to hear.

00:00:25 Welcome – Lynelle Long

00:03:51 Acknowledgement of Country – Mallika Macleod

00:05:15 Panelists Introduction

00:05:31 Maddy Ullman

00:07:07 Wes Liu

00:09:32 Farnad Darnell

00:11:08 Emma Pham

00:12:07 Daniel N Price

00:13:19 Mallika Macleod

00:15:19 The changing definition of disability – Farnad Darnell

00:17:58 Reframing how adoptees with disability can be viewed – Mallika Macleod

00:20:39 Processing the shame and brokenness often associated with being adopted and living with disability – Wes Liu

00:23:34 Dealing with people’s reactions and expectations – Maddy Ullman

00:28:44 Sense of belonging and how it has been impacted – Emma Pham

00:30:14 Navigating the health care system – Daniel N Price

00:31:58 What helped to come to terms with living with disability – Mallika Macleod

00:35:58 How disability might add some extra complexities in reunion – Maddy Ullman

00:39:44 The dynamics between adoptive parents and what is ideal – Wes Liu

00:42:48 Preventing the risk of suicide – Daniel N Price

00:44:26 Children being sent overseas via intercountry adoption because of their disability – Farnad Darnell

00:47:09 What people need to consider when starting off adopting a child with disability with “good intentions” – Emma Pham

00:50:13 How the experience of feeling isolated changed over time – Wes Liu

00:53:25 The role of genetics in her conditions – Maddy Ullman

00:56:35 What worked when facing employment challenges – Mallika Macleod

00:59:11 Becoming self sufficient and independent – Emma Pham

01:02:42 Suggestions for adoptive parents – Daniel N Price

01:03:48 Suggestions for adoption professionals to better prepare adoptive parents – Farnad Darnell

01:06:20 How adoptive families can best discuss whether disability was the reason for relinquishment – Farnad Darnell

Summary of Key Messages from the Webinar

点击这里 for a pdf document outlining the key messages from each panelist and the matching webinar video timecode.

ICAV Perspective Paper

For those who want to dive deeper and explore this topic further, we have also compiled our latest ICAV Perspective Paper which you can read 这里. It is a collation of lived experience perspectives offering a rare view into the lives of a dozen intercountry adoptees who live with disability and rare medical conditions. Together, these resources of the webinar and perspective paper fill a huge gap in knowledge about this subset within the intercountry adoptee community. I hope this instigates the beginning of further discussions and forums designed to help raise awareness and create better supports for and within the community.

I want to raise extra attention that within the in-depth sharing of our perspective paper and the webinar, those who contributed made numerous mentions of the heightened risk of suicide, depression, and isolation. We need to do more to better support our fellow adoptees who are most vulnerable living with disability and medical conditions.

Photography courtesy of Maddy Ullman and Wes Liu

If you have any additional resources that can help build upon what we have started, please 联系ICAV or add your comment to this post, so I can continue to grow this list below.